Person Centric Data Management Models and Opportunities in the Healthcare Sector - the Nordic Way report pre-published only in DHR website (you can download it below)!
Summary/short version of the report:
| person_centric_data_management_models_and_opportunities_in_health_care_sector_summary.pdf |
Full version of the report:
| person_centric_data_management_models_and_opportunities_in_health_care_sector_full.pdf |
ACADEMIC PUBLICATIONS
Kemppainen, L., Koivumäki, T., Pikkarainen, M., & Poikola, A. (2019). Emerging Revenue Models for Personal Data Platform Operators: When Individuals are in Control of Their Data. Journal of Business Models, 6(3). https://doi.org/10.5278/ojs.jbm.v6i3.2053
Maja Neiman, Cecilia Hellström, David Just, Cecilia Mattsson, Linn Fagerberg, Ina Schuppe-Koistinen, Anders Gummesson, Göran Bergström, Olli Kallioniemi, Adnane Achour, Riitta Sallinen, Mathias Uhlén & Peter Nilsson (2019) Individual and stable autoantibody repertoires in healthy individuals, Autoimmunity, 52:1, 1-11, DOI: 10.1080/08916934.2019.1581774
Huhtala, T. 2018: Using Personal Data to Advance Preventive Healthcare Services. Journal of Service Science Research 10(1), 77-115.
Pikkarainen, M., Pekkarinen, S., Koivumäki, T., Huhtala T. 2018: Data as a driver for a shaping practices and innovation in preventive healthcare service delivery network, Journal of Innovation Management 6 (1) 55-79.
Yli-Kauhaluoma, S., Pantzar, M. 2018: Seeking connectivity to everyday health and wellness experiences: Specifities and consequences of connective gaps in self-tracking data. Digital health, 4, 2055207618779714. doi:10.1177/2055207618779714
Alén-Savikko, A. 2017: Ennaltaehkäisy, hyvinvointipalvelut ja työntekijän tietojen hyödyntäminen - katsaus tietosuojaan työterveydessä. In Korpisaari, P. (ed.): Viestintäoikeuden vuosikirja 2016. Forum Iuris, 174-191.
Alén-Savikko, A. 2017: Kirjallisuutta: Analyysia ja visioita EU:n tietosuojasääntelystä. Reforming European Data Protection Law. Edited by Serge Gutwirth, Ronald Leenes & Paul de Hert. Springer 2015. XX + 406 s. Lakimies 2/2017, 299-305.
Koivumäki T., Pekkarinen S., Lappi M., Väisänen J., Juntunen J., Pikkarainen M. 2017: Consumer Adoption of Future MyData-Based Preventive eHealth Services: An Acceptance Model and Survey Study. Journal of Medicinal Internet Research 2017;19(12)
Alén-Savikko, A. 2016: Naamoja ja meemejä - henkilötiedoista sosiaalisessa mediassa. Defensor Legis. 2016/4, 497-514.
Alén-Savikko, A., Pitkänen, O. 2016: Rights and Entitlements in Information: Proprietary Perspectives and Beyond. in Bräutigam, T., Miettinen, S. (eds.): Data Protection, Privacy and European Regulation in the Digital Age. Forum Iuris.
Harjumaa, M., Saraniemi, S., Pekkarinen, S., Lappi, M., Similä, H., Isomursu, M. 2016: Feasibility of digital footprint data for health analytics and services: an explorative pilot study. BMC Medical Informatics and Decision Making 16:139.
Janacik-Honkela, N., Ruckenstein, M. 2016: MyData: Teknologian orjuudesta digitaaliseen vastarintaan. Tieteessä tapahtuu 34(2).
Ledesma, A., Al-Musawi, M., Nieminen, H. 2016: Health figures: an open source JavaScript library for health data visualization. BMC Medical Informatics and Decision Making, 16(1): 1.
Muuraiskangas, S., Harjumaa, M., Kaipainen K., Ermes, M. 2016: Process and Effects Evaluation of a Digital Mental Health Intervention targeted at Improving Occupational Well-being: Lessons From an Intervention Study With Failed adoption. JMIR Ment Health 2016;3(2):e13 DOI: 10.2196/mental.4465.
Pantzar, M, Ruckenstein, M., Mustonen, V. 2016: Social rhythms of the heart. Health Sociology Review.
Ruckenstein, M. 2016: Keeping data alive: talking DTC genetic testing. Information, Communication & Society.
Harjumaa, M., Halttu, K., Koistinen, K., Oinas-Kukkonen, H. 2015: User Experience of Mobile Coaching for Stress-Management to Tackle Prevalent Health Complaints. In Nordic Contributions in IS Research (pp. 152-164). Springer International Publishing.
Oksanen, V., Heiskala, M. 2015: Tietotekninen tutkimus ja tutkimusetiikka – Ratkaisematon haaste eettisille toimikunnille. In Terhi Aaltonen-Ogbeide (ed.): Silmät auki IT-etiikkaan. Tulevaisuustoimikunta.
Ruckenstein, M., Pantzar, M. 2015: Beyond the Quantified Self: Thematic exploration of a dataistic paradigm. New Media & Society.
Ruckenstein, M., Pantzar, M. 2015: Datafied Life: Techno-Anthropology as a Site for Exploration and Experimentation. Techné: Research in Philosophy and Technology 19(2): 193–212.
Ruckenstein, M. 2015: Uncovering everyday rhythms and patters: food tracking and new forms of visibility and temporality in health care. Techno-Anthropology in Health Informatics: Methodologies for Improving Human-Technology Relations, 215, 28-40.
