Person Centric Data Management Models and Opportunities in the Healthcare Sector - the Nordic Way report pre-published only in DHR website (you can download it below)!
Summary/short version of the report:
| person_centric_data_management_models_and_opportunities_in_health_care_sector_summary.pdf |
Full version of the report:
| person_centric_data_management_models_and_opportunities_in_health_care_sector_full.pdf |
ACADEMIC PUBLICATIONS
Huhtala, Tero (2022). Data-based value creation in healthcare service delivery networks. Academic dissertation at University of Oulu.
Marabita F, James T, Karhu A, Virtanen H, Kettunen K, Stenlund H, Boulund F, Hellström C, Neiman M, Mills R, Perheentupa T, Laivuori H, Helkkula P, Byrne M, Jokinen I, Honko H, Kallonen A, Ermes M, Similä H, Lindholm M, Widén E, Ripatti S, Perälä-Heape M, Engstrand L, Nilsson P, Moritz T, Miettinen T, Sallinen R, Kallioniemi O. Multiomics and digital monitoring during lifestyle changes reveal independent dimensions of human biology and health. Cell Syst. 2022 Mar 16;13(3):241-255.e7. doi: 10.1016/j.cels.2021.11.001. Epub 2021 Dec 1. PMID: 34856119.
Kemppainen, L., Koivumäki, T., Pikkarainen, M., & Poikola, A. (2019). Emerging Revenue Models for Personal Data Platform Operators: When Individuals are in Control of Their Data. Journal of Business Models, 6(3). https://doi.org/10.5278/ojs.jbm.v6i3.2053
Maja Neiman, Cecilia Hellström, David Just, Cecilia Mattsson, Linn Fagerberg, Ina Schuppe-Koistinen, Anders Gummesson, Göran Bergström, Olli Kallioniemi, Adnane Achour, Riitta Sallinen, Mathias Uhlén & Peter Nilsson (2019) Individual and stable autoantibody repertoires in healthy individuals, Autoimmunity, 52:1, 1-11, DOI: 10.1080/08916934.2019.1581774
Huhtala, T. 2018: Using Personal Data to Advance Preventive Healthcare Services. Journal of Service Science Research 10(1), 77-115.
Pikkarainen, M., Pekkarinen, S., Koivumäki, T., Huhtala T. 2018: Data as a driver for a shaping practices and innovation in preventive healthcare service delivery network, Journal of Innovation Management 6 (1) 55-79.
Yli-Kauhaluoma, S., Pantzar, M. 2018: Seeking connectivity to everyday health and wellness experiences: Specifities and consequences of connective gaps in self-tracking data. Digital health, 4, 2055207618779714. doi:10.1177/2055207618779714
Alén-Savikko, A. 2017: Ennaltaehkäisy, hyvinvointipalvelut ja työntekijän tietojen hyödyntäminen - katsaus tietosuojaan työterveydessä. In Korpisaari, P. (ed.): Viestintäoikeuden vuosikirja 2016. Forum Iuris, 174-191.
Alén-Savikko, A. 2017: Kirjallisuutta: Analyysia ja visioita EU:n tietosuojasääntelystä. Reforming European Data Protection Law. Edited by Serge Gutwirth, Ronald Leenes & Paul de Hert. Springer 2015. XX + 406 s. Lakimies 2/2017, 299-305.
Koivumäki T., Pekkarinen S., Lappi M., Väisänen J., Juntunen J., Pikkarainen M. 2017: Consumer Adoption of Future MyData-Based Preventive eHealth Services: An Acceptance Model and Survey Study. Journal of Medicinal Internet Research 2017;19(12)
Alén-Savikko, A. 2016: Naamoja ja meemejä - henkilötiedoista sosiaalisessa mediassa. Defensor Legis. 2016/4, 497-514.
Alén-Savikko, A., Pitkänen, O. 2016: Rights and Entitlements in Information: Proprietary Perspectives and Beyond. in Bräutigam, T., Miettinen, S. (eds.): Data Protection, Privacy and European Regulation in the Digital Age. Forum Iuris.
Harjumaa, M., Saraniemi, S., Pekkarinen, S., Lappi, M., Similä, H., Isomursu, M. 2016: Feasibility of digital footprint data for health analytics and services: an explorative pilot study. BMC Medical Informatics and Decision Making 16:139.
Janacik-Honkela, N., Ruckenstein, M. 2016: MyData: Teknologian orjuudesta digitaaliseen vastarintaan. Tieteessä tapahtuu 34(2).
Ledesma, A., Al-Musawi, M., Nieminen, H. 2016: Health figures: an open source JavaScript library for health data visualization. BMC Medical Informatics and Decision Making, 16(1): 1.
Muuraiskangas, S., Harjumaa, M., Kaipainen K., Ermes, M. 2016: Process and Effects Evaluation of a Digital Mental Health Intervention targeted at Improving Occupational Well-being: Lessons From an Intervention Study With Failed adoption. JMIR Ment Health 2016;3(2):e13 DOI: 10.2196/mental.4465.
Pantzar, M, Ruckenstein, M., Mustonen, V. 2016: Social rhythms of the heart. Health Sociology Review.
Ruckenstein, M. 2016: Keeping data alive: talking DTC genetic testing. Information, Communication & Society.
Harjumaa, M., Halttu, K., Koistinen, K., Oinas-Kukkonen, H. 2015: User Experience of Mobile Coaching for Stress-Management to Tackle Prevalent Health Complaints. In Nordic Contributions in IS Research (pp. 152-164). Springer International Publishing.
Oksanen, V., Heiskala, M. 2015: Tietotekninen tutkimus ja tutkimusetiikka – Ratkaisematon haaste eettisille toimikunnille. In Terhi Aaltonen-Ogbeide (ed.): Silmät auki IT-etiikkaan. Tulevaisuustoimikunta.
Ruckenstein, M., Pantzar, M. 2015: Beyond the Quantified Self: Thematic exploration of a dataistic paradigm. New Media & Society.
Ruckenstein, M., Pantzar, M. 2015: Datafied Life: Techno-Anthropology as a Site for Exploration and Experimentation. Techné: Research in Philosophy and Technology 19(2): 193–212.
Ruckenstein, M. 2015: Uncovering everyday rhythms and patters: food tracking and new forms of visibility and temporality in health care. Techno-Anthropology in Health Informatics: Methodologies for Improving Human-Technology Relations, 215, 28-40.
Academic dissertation
